Since holding the first re-established support group meeting, Sarah has agreed to take on the role of National Support Group Liaison Officer and it is her goal to help to re-instate the peer support groups for the Charity.

In order to do this, we need a network of volunteers who would be interested in setting up a meeting in their local area. The intention is to set-up a local group in various geographical regions around the country. Are you: –

• A good listener and non-judgemental?
• A person with the ability to work with people from diverse communities and with different needs?
• Someone with experience of living with Chiari malformationAn anatomical abnormality affecting the lowermost part of brain, where it joins the spinal cord, at the top of the neck. Various sub-types are described – see under their individual names. The term hindbrain hernia is sometimes used to incorporate all forms./syringomyelia?

If so, then you may be the person we are looking for!

If you feel that you would like to help develop a support group in your area, then please get in touch and register your interest via local@annconroytrust.org. Likewise, if you are someone who would be interested in attending a local support group meeting, again please get in touch with us via local@annconroytrust.org, tell us where you live and provide us with your contact details.