The series includes some personal stories and experiences from people who are living with Chiari malformationAn anatomical abnormality affecting the lowermost part of brain, where it joins the spinal cord, at the top of the neck. Various sub-types are described – see under their individual names. The term hindbrain hernia is sometimes used to incorporate all forms. and/or syringomyeliaA cavity, within the spinal cord, which is filled with cerebrospinal fluid. Syringomyelia cavities come in various “shapes and sizes”, from short, spindle-shaped cavities through to long, tense cavities extending throughout the greater part of the spinal cord. See also hydromyelia. More, there’s also a podcast taking a look at what support The Ann Conroy Trust provides.
The series supports the Charity’s aim to raise awareness and understanding of Chiari malformationAn anatomical abnormality affecting the lowermost part of brain, where it joins the spinal cord, at the top of the neck. Various sub-types are described – see under their individual names. The term hindbrain hernia is sometimes used to incorporate all forms. and syringomyeliaA cavity, within the spinal cord, which is filled with cerebrospinal fluid. Syringomyelia cavities come in various “shapes and sizes”, from short, spindle-shaped cavities through to long, tense cavities extending throughout the greater part of the spinal cord. See also hydromyelia. More, and to help people to ‘live with’ rather than ‘suffer from’ these conditions.
The series aims to be positive and educational, and we hope it will inspire listeners to live their lives to the fullest, despite being diagnosed with a rare neurological condition.
The aim of the podcasts is to help others, especially those who have recently been diagnosed with the condition/s, by trying to ease any fears they may have and to offer them some optimism and let them know that they are not alone and that there is a wider community and support out there for them.
We hope that by listening to the podcast series, it will offer some support and reassurance to anyone who is going through a similar experience. It’s so beneficial hearing others talk about how they live with their condition/s. Hearing it from a personal perspective can be really helpful.
Everyone at the Ann Conroy Trust would like to thank the volunteers and contributors who have given their time to create this series.
We are looking for more people to feature in the podcast series. Do you currently live with Chiari malformationAn anatomical abnormality affecting the lowermost part of brain, where it joins the spinal cord, at the top of the neck. Various sub-types are described – see under their individual names. The term hindbrain hernia is sometimes used to incorporate all forms. and/or syringomyeliaA cavity, within the spinal cord, which is filled with cerebrospinal fluid. Syringomyelia cavities come in various “shapes and sizes”, from short, spindle-shaped cavities through to long, tense cavities extending throughout the greater part of the spinal cord. See also hydromyelia. More. Do you have a positive mindset and an optimistic outlook, are you resilient to life’s challenges. Would you like to share your story and experiences with us and also provide some hope and reassurance to others who may have recently been diagnosed with the condition/s. If so, get in touch with us via info@annconroytrust.org and provide us with your contact details.
