The UK Chiari 1 Study aims to investigate the quality of life of patients with Chiari 1
malformation managed either with or without surgery. Patients who have seen a
neurosurgeon for the first time will be approached about the study and asked to complete a
questionnaire about their symptoms and quality of life. Each patient will be asked to repeat
the questionnaire one-year later, as well as one-year following any decompression surgery
that they may have. The study is a multicentre and collaborative project that is being
coordinated by UK neurosurgical trainees (the British Neurosurgical Research Trainee
Collaborative; www.bntrc.org.uk) and will be supported by neurosurgical colleagues across
the UK. The UK Chiari 1 Study launched in October 2020 and will take approximately three
years to complete.