Here, we collected a series of stories from patients, professionals, families of patients, carers and supporters. These are stories that have previously been published in our magazine and which we feel may be of value to a wider readership. We will always obtain permission from the original contributor to our magazine, before posting any personal stories here.

My Story by Janet Sutherland

Hi my name is Janet Sutherland and I was diagnosed with syringomyeliaA cavity, within the spinal cord, which is filled with cerebrospinal fluid. Syringomyelia cavities

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Graham Flint: What does it mean to be a trustee, and how did I get here?

My association with this Charity began some 25 years ago, when I inherited the syringomyelia service that had been set up, in Birmingham, by the late Bernard Williams. Ann Conroy had been one of Bernard’s patients but

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