Sally Lambert: My Story
It was in October 2012 that our 17 year old daughter Georgia was diagnosed with Chiari MalformationAn anatomical abnormality affecting the lowermost part of brain,
Here, we collected a series of stories from patients, professionals, families of patients, carers and supporters. These are stories that have previously been published in our magazine and which we feel may be of value to a wider readership. We will always obtain permission from the original contributor to our magazine, before posting any personal stories here.
It was in October 2012 that our 17 year old daughter Georgia was diagnosed with Chiari MalformationAn anatomical abnormality affecting the lowermost part of brain,
Hi my name is Janet Sutherland and I was diagnosed with syringomyeliaA cavity, within the spinal cord, which is filled with cerebrospinal fluid. Syringomyelia cavities come in various “shapes and sizes”, from short, spindle-shaped cavities through to long, tense cavities extending throughout the greater part of the spinal cord. See also hydromyelia. More in May 1994. I would liketo tell you my story. I was born
Our youngest son is called Ben. He was 3 years old when we found out that there was aproblem with his brain. Up to that
In 2009, I was a Head of a Department in a local Further Education college and a singleparent with two young children, who were then
Lynn’s ability to support and empathise with other people was born, at least in part, out of her own experiences of living with Chiari and
My association with this Charity began some 25 years ago, when I inherited the syringomyeliaA cavity, within the spinal cord, which is filled with cerebrospinal fluid. Syringomyelia cavities come in various “shapes and sizes”, from short, spindle-shaped cavities through to long, tense cavities extending throughout the greater part of the spinal cord. See also hydromyelia. More service that had been set up, in Birmingham, by the late Bernard Williams. Ann Conroy had been one of Bernard’s patients but