Here, we collected a series of stories from patients, professionals, families of patients, carers and supporters. These are stories that have previously been published in our magazine and which we feel may be of value to a wider readership. We will always obtain permission from the original contributor to our magazine, before posting any personal stories here.
Lynn’s ability to support and empathise with other people was born, at least in part, out of her own experiences of living with Chiari and
My association with this Charity began some 25 years ago, when I inherited the syringomyeliaA cavity, within the The main nerve trunk running down the spinal canal and connecting the individual’s mind and consciousness to the rest ..., which is filled with cerebrospinal