Local Support Groups - Standards

The aim of the Ann Conroy Trust Local Support Groups is to bring together, in a local area, people living with, or recently diagnosed with, Chiari malformation and/or syringomyelia, in order for them to meet, socialise and share experiences in an informal and supportive setting. These groups cannot provide medical advice or information to their own members or others. Nor are meetings to be used for the criticism of healthcare professionals, or political campaigning. Anything discussed in the group must remain confidential and we ask members to always respect others’ privacy. Information would only be shared with outside organisations in exceptional circumstances, in particular where someone is at risk of harm, abuse, or if any other safeguarding issue came to light. Any queries arising from the group meetings should be directed to the Ann Conroy Trust website where further information on the conditions and a list of professionals can be found.

Would you like more info?