Do you have a story you would like to share with us, perhaps it’s your personal experience of living with Chiari malformationAn anatomical abnormality affecting the lowermost part of brain, where it joins the spinal cord, at the top of the neck. Various sub-types are described – see under their individual names. The term hindbrain hernia is sometimes used to incorporate all forms. and/or syringomyeliaA cavity, within the spinal cord, which is filled with cerebrospinal fluid. Syringomyelia cavities come in various “shapes and sizes”, from short, spindle-shaped cavities through to long, tense cavities extending throughout the greater part of the spinal cord. Read more, or maybe you, your family or friends have been busy fundraising or raising awareness, if so, please get in touch, a photo or two also helps to bring a story to life as well.

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